FAQ - FREQUENTLY ASKED QUESTIONS

1. I am not sure I have Peyronie’s disease.  There is a little bump on my penis and maybe there is a small curvature when I get an erection, but I think it may have been there before.  I have no pain and my erections are just like they always have been. Could I have Peyronie’s disease?
No one can say if you have Peyronie’s disease, or not, without a thorough history and complete examination  Our first recommendation is to get yourself checked by your family doctor or a urologist so you know for sure what you are dealing with. If the diagnosis is PD, it is likely an early case so it is very important that you get started with an aggressive plan of conservative care. Please review all the information on this website and discuss it with your doctor when you get checked out.

2. I've had Peyronie’s for about a year now.  It seems like my penis is getting more bent all the time even though I'm taking medication that was prescribed for me. If you didn’t have a lot of money to spend, what would you do?
As with most men, I am sure the health and well being of your penis is of critical importance to you. Since you ask the question “what would you do?” your question will be answered that way: If it were my penis that was getting more bent all the time I would make a very deliberate and intense effort to find the money I needed to help myself as much as I could. I would declare this a personal emergency and do what I had to do to take care of my problem. Having said all that, and realizing there are always financial considerations to every decision like this, I would first read all the sections on this website to identify the areas that seem to address my needs most, and start from there. Our advice is to closely evaluate what therapies you need, and do not make the mistake of being casual or cheap about taking care of yourself and later regretting it.

3. My Peyronie’s scar changes all the time! I swear, sometimes that scar down there seems to be different every few hours.  Is that possible???  Is it common for the scar to change so much?!?!?
Yes, frequent change of the penile scar is common for many men in the early stages of PD. For the very reason the scar changes so much in your case, you should feel encouraged that your tissue is responding to various biological conditions and activity in your body and various subtle influences you probably do not recognize.  It is the opinion of
PDI that these changes in your scar are not random, but that they occur in response to the many changes that take place in your internal chemistry all day long.  Further, these internal changes are often in response to things that you can control.  Once you become more aware of the association between how you feel, what you do, what you eat, or whatever, that PDI theorizes are connected to frequent changes in your scar, then you will be on your way to understanding your problem better and managing it -- rather than it controlling you. 

These frequent changes can be taken as a sign that your scar is still remodeling, and this also works in your favor. PDI's theory is that while the scar is capable of such frequent change, there is still the potential for a favorable response to therapy. In other words, if the scar can change so much and so fast in response to things that you are doing or are happening to you -- that you are not aware of -- then it is possible to influence some degree of favorable change in the scar if sufficient deliberate effort and intense support is delivered to the area -- that you are aware of. PDI has the opinion that while your scar is changing it is still possible to support the tissue to increase the odds it will change in the direction you want it to go. This could be an excellent time for you to get on an aggressive program of therapy for your PD.

4. I was diagnosed with PD about four years ago. I did not do anything to treat it, as my doctor suggested. It never really got too painful, and my curvature is not as bad as some I have read about.  Because of this my doctor was really happy with the way my PD turned out. But I feel like a freak and I am getting more self-conscious because of my crooked penis.   And my wife is not so pleased that our sex life is not as good as before.  We can still do it, but there is so much more work involved that we just don't bother most of the time.  My problem has not changed much for about two years now. Is it too late for me to try doing something to help myself?
The more chronic the condition, the longer it can take to change, and maybe never change. There are those cases of PD that just do not respond, no matter how early or intense the treatment, or what barrage of therapy is used. There is no way to know if you will respond without simply getting busy and doing your level best to create a favorable environment for healing. There are cases of chronic and fibrous PD that have made total and complete improvement.  Some have made great improvement, some moderate improvement, and some no improvement. Anything is possible, but only if you try. Just because your PD is old does not mean it is beyond help; it might just take longer. We always advise that it would be a shame to give up without even starting. You have too much to gain by a good effort.

5. I think I can save a few dollars here and there, if I shop around on the Internet.  Why should I get all the different vitamins and supplements from
PDI?
There are many reasons. Here are a few of the more important reasons.

Service   
PDI offers email support and assistance for the products and services we provide. We provide experience and interest in helping you with PD. An Internet discount broker only takes orders.  Just try getting some general information about their own products, to say nothing of specific information about PD. You can rest assured they will not know anything about PD. PDI is here to help you with questions about the products we sell.  We are not able to comment on products or situations that arise from other sources.  We offer this as an extremely valuable service the others cannot possibly match.

Quality and Quantity  You must be very sure your lower price vitamins and supplements are the same quality and quantity as those we have available. For the purpose of improving your nutritional intake, you want every product to have not only a high dosage of the desired product and the highest quality as well. If you want and need a Cadillac and then focus only on price, you might not realize you are actually buying a Yugo. Since you are on such an important mission, it is critical that you use high quality and quantity nutrients. You get what you pay for.

With some products from some companies the label might say it has 100 mg of some ingredient, but how do you know for sure that 100 mg is actually in each capsule? Since all of this discussion ultimately is about the well-being of your penis, this is an important question.
PDI deals with huge companies that have earned established reputations in the health care industry. You can trust them, based on their track records and their leagues of satisfied customers.

It is important to check labels carefully. Do a little math to determine how many capsules or tablets you need to take of your bargain product to get the dose you need. If you have to take twice as much of a product, that might explain why a product is being sold at half the price.

Lastly, be sure that your bargain product is not going to cost you more in the long-run in terms of reduced effectiveness and disappointment.  Sometimes a bargain turns out not to be a bargain.

Convenience and speed   The longer you take to start treating PD, the longer and more difficult treatment can be, and the likelihood of success deteriorates. Everything you need is here, in one place. You can get started today, and know you are using high level products from established companies that are leaders in their respective fields.

Value
   Compare our prices for the high level of quality and quantity of these particular formulations.
PDI has a competitive pricing structure of which we are proud. You cannot find better products that deliver this Q/Q for the prices we have set.

6. What are the most important therapies that you recommend?
That is perhaps the most common question
PDI is asked. There is no good way to answer that question without leading you astray. Everyone seems to have a favorite therapy they think has contributed more to their recovery than the others that were used. Yet, the most important therapy should be the one that addresses the most needs that you have at the start of care. This can be determined by reading and reviewing the material in the various therapy discussions on this website. Only you can put together your treatment plan.

7. If I use all these different therapies to treat my PD, how will I know which one really helped me?
You won’t. But is it really that important? Your most important priority should be to simply get well, first and foremost. You can always play a game later, attempting to figure out the most valuable therapy.

Here is another way of looking at your question, and the problem of trying to get over PD. Suppose you wanted to balance out a scale that had a five pound weight on one side and no weight on the other.  You would start out by putting the first one-pound weight on the empty side, and nothing would happen so you would place another one-pound weight, and then another, and so on. Eventually, as you put on the fifth one-pound weight, the balance would move and you would have balanced or tipped the scale as you wanted to do. It would look like there was some magic in that last one-pound weight, because when it was added the scale became balanced. But, what if you had just started out with that last weight, the fifth one-pound weight? Would that one particular one-pound weight have worked? Of course not!  There is nothing special about the last one-pound weight, without the others that were used along with it. Balancing the scale is accomplished by a group effort.

The answer to your question is that there will be no one therapy that will “tip your scale” to regain your health more than the others. All of the therapies you use contribute in some way to whatever level of success you achieve – perhaps some more and some less – but all are needed to get the job done.  This underscores the value and importance of working with a wide and diversified group of therapies that stand the best chance of improving your recovery and immune response.

8. What therapies do you recommend at the start of treatment?
As many as you possibly can. The
PDI concept is about using combinations of several therapies for a multiplication of potential benefits. Two are better than one, four are better than three, and so on. The idea is to overwhelm the problem, from several different therapeutic directions at the same time. Think of it as preparing your tissue to do some really extraordinarily important work that you simply do not want to result in failure; you will want to give your tissue every advantage and assistance you can.

Another aspect of using several therapies at the same time has to do with synergy. This means the harmonious or mutually beneficial effect of two or more objects working together to achieve a result or goal that is greater than the sum of their efforts.  Using the synergy of several therapies is based on the idea that the combined effect of all of them is greater than just the simple sum of the individual therapies. To say it another way: synergy is the tendency of one plus one to equal three. It is our experience that by simply combining several therapies (the more the merrier), the greater the synergy or multiplying effect you have working for you. How much synergy you want to invest in this effort depends entirely on you, and how important it is to you to thoroughly treat your PD. 

9. I read about some men who used just one treatment to get rid of their Peyronie's, like vitamin E, DMSO, Verapamil, etc.  Wouldn’t it be more efficient to try one for a while and see what happens? I can always do another therapy later, another different one, etc, if I have to go that far.  
There are several points to make. First. Yes, we all have read reports in which men only took vitamin E, or just carnitine, or just quercetin, or just homeopathy, or whatever, and their PD went away. But as you also recall from any report you have read, not everyone responded. Some men do not receive any benefit at all, some only slight improvement, some moderate change, and so on. That is the point. Not everyone seems to respond in the same way to the same therapy. No one knows ahead of time which treatment will work, if any. The idea behind the synergistic benefits of aggressive multiple therapies is that you are hedging your bet by covering as many options as you can to improve your chances of recovery.  The idea behind the
PDI plan is to push the odds in your favor by using the synergy of multiple simultaneous therapies, since no change or improvement can ever be guaranteed.

Second, if you have PD you probably do not have a lot of time to play around trying to find your magic bullet. With each passing day your chances for recovery diminish as the scar advances toward a chronic state. An old scar can be softened, but it will probably take more time, more therapies and more effort. Better to do it right the first time when it is easier. The idea is to aggressively do all that you can with as many conservative therapies as you can at the same time to increase the ability of the tissue to heal correctly and completely, as soon as possible.

Third, you might be more efficient with your single-treatment method but our concern is not about efficiency − it is about success and results. Remember, this is your PENIS you are trying to help.

How does a general conduct a battle plan? Does he send out one soldier at a time? No, he sends out large groups of soldiers who have a greater effect − a mass attack − to overwhelm the enemy. The general understands he might be engaging more soldiers than actually needed, but his mission is to win the battle above all else. 
PDI wants you to win this one. Isn't that your goal, too? 

10. How often should I apply the vitamin E and copper solution to my penis?
Twice a day is good for most people. However, some men’s sensitive skin can tolerate only a daily application, while others do well with three times a day when they can find the time to do it. Be aware of the condition of your skin, and do not over do it.  Over the long term you will want to use a dose that you can stay with while you are saturating the penis tissue with these nutrients.  

You know, the same idea applies to all of the therapies on this website.  Whether it is a PABA, nattokinase, or vitamin C, you must be aware of how your body is responding to the use of any of these therapies and proceed with due caution and care if there are adverse reactions.  Each man is ultimately responsible for his own care and progress.    

11. I have the copper lotion (Super CD serum), vitamin E oil (Callisto oil), and the DMSO (PABA/MSM Combo) to treat my penis. It seems like a lot of stuff to be putting on. What is the right way to apply all of it?
Detailed instructions for applying topical Callisto vitamin E, copper and DMSO are included in each shipment of these products.  Just follow these simple directions.  Email or call us on the toll-free number if you want another sheet sent to you.   

12. When should I expect to see results?
No one can say for sure if a person is going to see any results with the treatment
PDI recommends and certainly no one can say when, either. Some of the variables that influence how long treatment must continue before observable changes might occur:
1. Age of the individual. There is a tendency for younger men to heal faster and better, and older men to heal slower and less well. The older you are, the more important to use as many therapies as possible in your plan and prepare for a longer and slower recovery. It helps if the older guys try to be more stubborn than their PD.
2. Basic health of the individual is a very important factor. If you are a younger man (under 40 or so) but have been sick a lot in your life or have recently had health problems, your body and constitution might be as vulnerable as a 65 year old. In this case it could be all the more important to group as many therapies as possible into your plan and prepare for a longer and slower recovery. If you are 60 years of age and have good health, this will work in your favor.
3. History of prior injury. This could include direct injury to the genital area (being kicked in the groin, football and bicycle impacts, repeated bending of the erect penis years ago, wearing tight “jockey style” underwear that repeatedly distorts erections, or heavy abusive sexual activity. Also, indirect surgical injury to the lower pelvis (inguinal hernia surgery, appendectomy surgery, vasectomy surgery) that resulted in internal scar formation could now be compromising blood and lymphatic circulation.
4. Severity of the problem. The more damage and scar tissue there is, the more work the body has to do.
5. Duration of the problem.
6. Correct selection of therapy. 
7. Correct and diligent application of therapy.
8. Reasonably aggressive treatment plan being used.

All of these factors, and more, come together to determine how fast, how well − or if − your PD will respond to any treatment you use.  

13. I seem to be a lot better after just a few weeks following an intense PD treatment plan of eight different therapies from PDI.  Should I stop?
Sir, you are in control of your treatment not
PDI. We are merely offering information for your consideration.  We stress that all decisions about your treatment should be made in cooperation with your treating doctor, with you making the final decision.

If your scar has totally disappeared after a several weeks of treatment, congratulations! Our opinion, for your consideration, is that this improvement might be temporary.  It might not be in your best interest to stop care after just a few weeks. You might be going through one of the many ups and downs that is so typical of PD.

If you are like most men who begin to experience real improvement of their condition, you will begin to notice a change in the pattern of your scar. The scar might still continue to get softer and then harder, smaller and then larger, but the scales will tip in the direction of the scar being softer or smaller more often and longer than before. You might also notice (if you have a good sense of touch and really pay close attention) a change in the texture and density of the scar as progress occurs; the scar might no longer feel like a solid hard mass, but could seem to be separating or fragmenting, with individual fibers that can be detected where previously there were none. You might notice there is less pain and discomfort as you examine the scar than there was previously. The curve of the erection might change. If you discontinue therapy too soon you run the risk of any progress reversing after a short while.

As a general guideline, you might consider continuing the full program that brought you to that level of recovery – no changes or cutting back of anything – for at least two to three months. After a few months you might consider tapering off some of the therapies to a maintenance dose. At the first sign of recurrence, get back on the full program.

Since PD can recur, it is also our opinion to stay on a preventive course of some of the basic therapies, ( perhaps vitamin E, MSM and enzymes) for the rest of your life. While that may indeed be overkill, it might not be overkill.  No one knows.  But then again, how well do you want to take care of your penis?  It is your penis, it is your PD, and it is your decision. Another aspect of staying on a maintenance program of a few PD therapies is that they are all potentially beneficial to your general health and well-being.

14. I tried taking some vitamin E when I first got my Peyronie’s. It didn’t help. Why should I try using your vitamin E?
Not all vitamin E products are the same. Some are better than others. It is natural for people to look for bargains, and perhaps you made the simple mistake of using a vitamin E that did not contain all that you needed. The vitamin E products available through
PDI are high-grade products from a company that is on the cutting edge of medical science and technology. The founder and president of this company, Dr. Andreas Pappas, is perhaps the most knowledgeable person in the world about vitamin E. We stand behind our vitamin E products without hesitation. For more information, click on Vitamin E. In addition, we hold the same confidence about all of our other products -- that is why we make them available to you. 

15. When should I take the enzymes and vitamins?
Vitamins and other nutritional products like them (MSM) are basically food for the body and should be taken with meals, to be absorbed with all of the other nutrients in a meal. “When you sit down to eat, take your vitamins.”

Enzymes are very different. Enzymes will enter into and become part of whatever chemical process they are exposed to at the time you take them.  Many of the enzymes recommended by
PDI (serrapeptase, nattokinase, various proteases) will be used in digestion if there is food present in the stomach when they are taken. Therefore, to prevent the enzymes you are using for your PD program from being used for the digestion of food, they should be taken when the stomach is empty – between meals. It is best to take these enzymes an hour or more before you eat, or an hour or more after you eat. Taking enzymes is more complicated and requires more effort than taking vitamins. You have to plan your enzyme doses during the day, since it is critically important to take them at the right time. “ When you have nothing in your stomach, and it will stay that way for a while, take your enzymes.”

16. I like your idea about approaching PD treatment from a holistic and nutritional direction so my body can heal better. My question is, what else can I do to get healthier and heal better?
Excellent question!  There are many things to do to get healthier, depending on the individual. Most of us know what we need to change, we just don't like doing it. 

If you're a smoker, stop smoking. If you do not get much physical activity, get out and walk. If you are overweight, cut back on the fats and empty carbohydrates. If you eat a lot of junk food, cut it out. If you are addicted to coffee or sugar, change your ways. If you eat late at night, stop it. Now all of that sounds harsh and rather difficult. If you have tried to correct some of these problems in your life and have been unsuccessful, you might want to call
PDI to arrange a phone appointment for an EFT session. This technique can be extremely helpful in many areas of emotional life. It is rather easy to do, and it is not hypnosis, psychiatry, psychoanalysis or any kind of talk therapy. To learn more about EFT, click More about EFT. If you want to make an appointment for an EFT session, call the number given when you click EFT.

PDI feels that any real chance for getting over your PD is all about getting healthier. Most would agree that a healthy body is able to heal itself better than one that is not healthy.  Yet most doctors do not talk about or work toward health, they talk about disease and work to subdue it.  We think this difference in treatment philosophy is critically important. Throughout this website PDI recommends many strategies and therapies that are intended to get you healthier and closer to being able to heal yourself. Taking a good general multiple-vitamin, mineral and nutrient supplement on a daily basis is an essential part of any effort to stay well. With all of the difficulty of eating correctly it becomes more important to take a well-balanced broad base supplement.

We have discussed various factors that might contribute to the process of PD scar development, like blood supply and lymphatic drainage in the genital area. Having a problem with the prostate can reduce blood flow and lymphatic drainage in the lower pelvis; just what you do not want if you have PD. Since PD tends to develop in men in the 45-65 age range, just when the health and well-being of the prostate gland is a major issue for men, taking a multiple vitamin, mineral and nutrient product that is designed to also assist the health of the prostate makes a lot of sense. With this in mind,
PDI has made a very good quality multiple available on our order page that is intended to support the health and normal function of the prostate gland; it is not just a few herbs for the prostate. This is a well-balanced general multiple product PLUS emphasis toward those nutrients, minerals and herbs that are beneficial for the prostate gland.

This product that hits the center of the bull’s-eye for the man with PD is called Prosta-Support Formula. Once again the product just happens to come from Douglas Laboratory. Check out the formula contents and we think you will be as impressed with it as we are. This is a great multiple vitamin for all men, especially those with PD.

Order "Prosta-Support Formula"

Another thing we advocate for supporting your health nutritionally is a good quality “green drink”.  A green drink is a general category of powdered super-food high-fiber concentrated food that contains the equivalent of multiple servings of grains, fruits and vegetables in a single serving.  The nutrients come in a powered form and are simply added to water, to make a nutritious drink.  This is a way of benefiting from scientific advances in food processing to deliver significant nutrients easily into the diet. The problem is that a “green drink” usually tastes very bad (really bad!), and people find it difficult to faithfully take it every day. However,
PDI found what we think is the best tasting one a few years back and now have no problem with patient compliance in the office. If you are interested in doing one more thing to increase your daily antioxidant input, the absolutely best-tasting and most enjoyable “green drink” by far is “Greens First”. It is really a great tasting “green drink”.

Order "Greens First"

17. I get confused taking all the pills in my plan.  Any recommendations for keeping everything straight, so I take them at the right time?
When we send out the vitamins, other nutrients, and enzymes that you decide to include in your treatment plan, you are given a sheet of paper that clearly and simply states if the contents of a particular bottle should be taken with meals (a vitamin or similar nutrient product), or between meals (an enzyme product).

PDI has a very simple system to help you. We have available plastic carrying cases for pills (about the size of a deck of cards), that are part of a little system that will make it easier to keep organized. We do not put our logo or name on these boxes for your privacy. There are two different boxes available.

If you have ordered a vitamin or vitamin-like nutrient product that should be taken with meals, you will want to order a colored box. Just remember that the colored box contains vitamins to take with your colorful meal; get it?

If you have ordered an enzyme product that should be taken between meals, when there is nothing in your stomach, you will want to order a clear un-colored box. Remember that the box with no color contains enzymes to take when your stomach has no food in it; get it?

Most men order both vitamins and similar nutrients along with enzymes, so they should also get two different boxes: colored for vitamins and no color for enzymes. With this two-box system it is easy to separate and organize your PD program.

18. I have read about other men who have just taken some vitamin E and gotten rid of their Peyronie’s scar. Why can’t I just do that; why should I take and do all these different things?
Yes, there are reports of men who simply took vitamin E, or just carnitine, or just MSM, or just serrapeptase, or whatever, and gotten over their PD. If you read those reports, you will notice that the percent of success is variable, and sometimes a little above or a little below 50% improvement.
PDI is attempting to get better results than these averages by using the power of synergy to maximize the ability of your tissue to heal and repair the Peyronie’s scar to the best of your ability. This is done by selecting a broad base of several (maybe many) therapies that will work cooperatively to improve your capacity to heal and repair in a way that you currently lack.

You are the boss. If you want to use just vitamin E, go for it.
PDI’s philosophy is that this is a very important issue to most men, and most men would rather not take a chance getting this problem corrected, if possible. To do this, most prefer to “hit it hard”. It all comes down to personal opinion, comfort level, and enthusiasm for winning (or the dread of losing).

19. Since developing PD I have become really depressed and I get angry for no reason. Lately I have been having some dark thoughts.  I read your article about EFT. Do you think EFT can help me?
PD is extremely stressful on many levels, and EFT is very good in helping people handle stress. Your response to this disease is not at all unusual; in fact, it is rather common. EFT can be an easy and gentle way to address your feelings. EFT is not psychiatry, it is not psychoanalysis, it is not a talk therapy. It is a simple and direct way of working with the energy system of the body to correct some of the reasons for these stressful responses. To learn more, click More about EFT.

20. I ordered several of the vitamin and enzyme products, the exercise tapes, the acupuncture device, the homeopathy, and the herbs. It really seems like all of this stuff is taking up a lot of my time. Is there some way to cut back and still get rid of my PD?
No, there doesn’t seem to be an easier way at this time. You can certainly do less, that is always your decision, but then you have less therapy working for you and you might not get the kind of results you want.

Everything in life comes at a price. On one hand you have the problem of time, money and considerable effort to treat PD aggressively for maybe 6-18 months, or longer, with multiple conservative measures. To take on a large and aggressive program of treatment for PD takes up a lot of time; it requires large and small sacrifices and impositions that will have to be tolerated for a while. On the other hand you have the problem of enduring a condition that can potentially leave you impotent and peeing around corners for the rest of your life. It might be important for you to determine which of the two is a bigger problem to you.

You can fuss and complain about your crooked penis, and we truly understand feeling sorry for yourself. You can choose to ignore the problem and hope the scar goes away on its own. You can get realistic and grasp the fact that there is not much interest or help available for PD, other than the help you give to yourself. 
PDI has amassed a large group of reasonable, but currently unproven, options from the medical literature that have variable track records of success. When taken together they have the potential to work synergistically to improve your overall health and increase the potential to heal to the best of your ability. It’s your penis. It’s your choice.

                "Being defeated is often a temporary condition.
                  Giving up is what makes it permanent."

                                                             - Marlene von Savant

 

Last updated: December 20, 2007

 

Peyronie's Disease Institute
The most helpful and positive
Peyronie's website on the Internet

Copyright © 2002 Peyronie's Disease Institute

Peyronie's Disease Institute
504 North Plum Grove Road
Palatine, IL 60067
Toll Free (877) 878-8188

info@peyronies-disease-help.com

Web design by Millennium Multimedia

Optimized for IE 5+ & Netscape 6+ (800 x 600 or greater)


download


download