Peyronie’s disease treatment inspiration

Just the other day I ran into this exciting quote that meant a lot to me.  I can only hope it will inspire you to feel more focused and confident as you conduct your Peyronie’s disease treatment; to gather your inner strength to do more to help yourself along during the repeated trials and long days you spend working for your personal Peyronies cure.

“At the moment of commitment, the universe conspires to assist you.”
Jean-Paul Sartre

I have seen this is in action in my life.  I have noticed many times, usually in great despair, that when I finally make up my mind about something - I finally no longer resist, but deeply and completely commit myself  - then suddenly the situation changes.  Problems reveal solutions.  Difficult people become cooperative.  I feel my determination and strength return.  Mountains of objections and problems become transparent to reveal the situation in such a different way that answers and success are finally in view.

Of course, all of this applies to Peyronie’s disease treatment in more ways than you can imagine.  If you find that you are more negative than you can stand, and you cannot think clearly any longer about the dark place you are in, send me a comment here.  Let’s work on it together.   TRH

Ladies Peyronies Forum – Women only!

Peyronie’s Disease Forum for Women Serves Useful Purpose

While no one can doubt that the man who has Peyronies suffers in many ways with this problem, the women who love and live with these men suffer greatly in their own way.  Every woman touched by Peyronie’s disease suffers not less because hers’ is an indirect involvement, but perhaps more because of the acute frustration and helplessness of being unable to do anything to comfort her man during his times of distress.

Many of the emails I receive each day come from the women who are just as confused, frustrated, and angry about all the same issues that each man experiences in trying to deal with PD – with a few added issues.

Just as the man who first learns he has Peyronies, the woman must also attempt to grasp the answers to the basic questions that commonly arise at this time:

  1. This condition I have never heard of before – Peyronie’s disease – just what is it, and what do we do to get rid of it?
  2. Is it life threatening?
  3. What do you mean, there is no known cause or Peyronies cure?
  4. In the early part of the 21st century, when even cancers are being cured, how is it possible that science has no help for this problem?
  5. Could it be that we have talked to a doctor who is lazy or incompetent: should we talk to someone else?
  6. Would we get better answers, and help, if we spent more money and went to a higher level specialist?
  7. How could this problem affect up to 9% of the male population, but I have never heard of it before?
  8. What do you mean, you do not know if it is going to get better or worse?

On and on the questions pour out, trying to make sense of a terrible situation.  But there are other questions that a woman must naturally ask in the privacy of her own self:

  1. I am sorry that he got injured during intercourse.  He knows I did not do it on purpose.  I feel so guilty when I see him suffering.  Is he holding all this against me?
  2. What about my sexual needs; what am I going to do now?
  3. I didn’t do anything wrong, why am I suffering too?
  4. Why is he being so quiet and secretive about this; why won’t he talk to me about this problem?  Doesn’t he realize It is affecting me, too?
  5. What is going on with him?  He is getting so moody and irritable that I am afraid to talk to him sometimes.
  6. I feel like there is a brick wall around him, and he is a hundred miles away.  Why won’t he talk to me?

Of course, there are all the sexual problems and sexual discussions that are so unique between couples.  These too, are a part of the problems associated with Peyronie’s disease – sometimes minor and manageable, and sometimes so major that a couple can not sustain themselves together.  In these cases where I counsel couples, I find that most all of the time each couple has a problem communicating on a much deeper level necessary to truly understand each other to the degree needed in this time of special need.

Throughout all this time, during discussion and lack of discussion, the woman suffers in her own unique way.  There are no easy answers to any of this, but it is necessary that a woman be able to communicate with someone, express her fears and her needs, and learn she is not alone.  This section of the Peyronie’s Disease Treatment forum blog is intended for this purpose.

Please feel free to ask questions, post comments and replies to each other, so you may feel this is a place of understanding and comfort for you.

Peyronie’s cure

No Known Peyronie’s Cure

As any reputable Peyronie’s disease website will tell you, there is no known Peyronies cause and no known Peyronie’s cure.  Any advertisement that tells you they have a Peyronies cure should cause you not to become hopeful, but very skeptical.

There are many large categories of products that are heavily promoted as a Peyronies cure.  There is even a book written about PD that claims it offers a Peyronie’s cure; when you read the book, you will learn it conveniently avoids making a claim for a cure even though a cure is mentioned in the title. In addition, if you Google the term “peyronies disease” you will always see a large column on the right-hand side, promoting any one and more of these products:

  1. Mechanical penis stretchers
  2. Vacuum tubes or VED
  3. Herbal preparations
  4. Systemic enzymes

Since I am deeply committed to helping men solve the riddle of how to increase their ability to self-heal Peyronie’s disease, as happens naturally in 50% of PD cases, I look into all of these companies who make a claim for a Peyronies cure.

Peyronie’s cure companies do not like to communicate

For several years I have followed a policy of sending at least three emails to each and every company that claims to have a Peyronie’s cure.  In each case I will introduce myself as someone who helps people with PD, and I disclose the URL address for the PDI website so they will know I am sincere.  I ask each one a few pointed questions about their product and their claims.  I even tell them that if there products are as good as they claim, I would be pleased to offer that product on the PDI website.  In this way, you can see that anyone who actually had a great product would be more than happy to discuss their Peyronie’s cure with me.  I do this for the high-priced mechanical penis stretchers, VED makers, and all makers of pills and potions that fit this description.  To date, I have never received a response from any one of them.

Based on the total lack of response from these people to my repeated questions, I think it is fair to assume these folks are not what they claim to be.  If you read their limited background website information, you will see the claims are not supported by anything.  If they had something of substance to say, they would not hesitate to let me know.

I seem to notice that many of them are many of them make it difficult to know where they are located.  You can imagine the kind of service you would receive after they have your money, or if you want to ask them to honor their refund guarantee.

If anyone has a comment or experience they would like to relate concerning any of these products that are supposed to be a Peyronie’s cure, I know I and many others would like to learn of your direct experiences.

Peyronie’s treatment, vitamin E, PABA and U.S. government

Vitamin E and PABA Used for Peyronie’s Treatment

Here is interesting vitamin E, PABA and Peyronie’s treatment information from the National Kidney and Urologic Diseases Information Clearinghouse, an important arm of the prestigious National Institute of Health, found at http://kidney.niddk.nih.gov /Kudiseases/pubs/peyronie/index.htm

This Peyronie’s treatment information is not exactly new, because frankly, there is not much that is  new in the search for a Peyronies cure.  Even so, what makes this section worth reading is that it is interesting and immensely informative in a different way.  What is important to know about Peyronies treatment from a medical standpoint is not what is revealed, but what is not  mentioned about Peyronie’s treatment – in this case concerning the use of vitamin E.

This following paragraph is copied under the NIH’s discussion of “Experimental Peyronie’s Treatments”:

“Some researchers have given vitamin E orally to men with Peyronie’s disease in small-scale studies and have reported improvements. Yet, no controlled studies have established the effectiveness of vitamin E therapy. Similar inconclusive success has been attributed to oral application of para-aminobenzoate [PABA], a substance belonging to the family of B-complex molecules.”

It is important to know that this is as far as the discussion concerning the use of vitamin E and PABA goes in this government article.  It reports that “small-scale studies…have reported improvements. Yet, no controlled studies have established the effectiveness of vitamin E therapy.”   So, if there was some improvement noted when vitamin E and PABA were used in Peyronie’s treatment, exactly why have there been no additional controlled studies conducted to prove or disprove that these early initial positive reports were factual?  If it looked like these two experimental, but natural, non-drug Peyronie’s treatments were helpful, how can it be that no further testing has been done in this direction?

Isn’t the drug industry, or the AMA, or the government, or some private research group out there supposed to be interested in finding a Peyronie’s cure?   If some natural Peyronie’s therapy like PABA or vitamin E showed some initial promise, why has no one looked into it further?   If something comes along that is naturally occurring, easy and inexpensive to produce, safe to take compared to drugs, and readily available in the marketplace, and happens to look like it could help men with Peyronie’s disease, why has it not been investigated further?  Why, indeed!

Vitamin E as a Peyronie’s treatment, or not

The answer to this natural question is found in the second sentence, in which it is mentioned, “no controlled studies have established the effectiveness of vitamin E therapy.”  This means that without these additional higher-level controlled studies, the effectiveness of vitamin E and PABA remain conveniently unproven. Therefore, vitamin E and PABA remain only at the experimental forever.  Exactly where the drug industry wants them to remain.  So long as they continue to ignore vitamin E – to not give it a legitimate opportunity to prove or disprove it’s value to assist in Peyronie’s treatment – the medical community and the drug industry can correctly say it is “unproven.”   This keeps vitamin E, and PABA, and other Alternative Medicine therapies out in the cold, where they would like them to remain.

It appears that the drug industry does not want to know if Peyronie’s disease can be treated with vitamin E.  If it were known that vitamin E, or PABA, or the PDI treatment concept of synergistic use of multiple Alternative Medicine therapies, are actually effective Peyronie’s treatments, then the entire argument against their use would crumble.  No one has stepped forward to conduct controlled studies because of fear that vitamin E, or PABA, might actually help the body heal the Peyronies plaque.

So long as the necessary tests are withheld, it is perfectly honest and legitimate to say that these natural therapies are “not proven” by controlled research.  This is a great discussion stopper, isn’t it?  Yet, no one goes the next step to ask, “And, exactly why have these necessary controlled studies not been performed in view of the small-scale studies that indicated these simple measures were effective?  Why the delay?  Why the lack of interest?”

Well, I guess we all know, and it should not surprise anyone, that the answer is the importance of profit over humanitarian interests.  It is unfortunate but apparently true, since I have found no reasonable answer to explain why this testing has not been conducted.   You can assure that if small-scale testing of a new drug showed the same improvement, that vast sums of additional funding would be forthcoming for controlled studies.  In this way, once that new drug could be proved or disproved, its march to the marketplace and profitability would be hastened.

Lastly, if you think the use of vitamin E or PABA might not be a reasonable kind of therapy to use because they are “unproven,” now you understand that this state of being unproven is a convenient strategy of those who help themselves more than they want to help you.

Perhaps this will help you to understand, and feel differently about, the use of vitamin E, PABA, and the rest of the Peyronie’s Disease Institute program to treat this male scourge.   For more information about the use of vitamin E in the treatment of Peyronie’s disease, go to Vitamin E, and to learn about the use of PABA in the treatment of Peyronie’s disease, go to PABA.

This is why it is necessary for each man to look out for himself and become the master of his own Peyronie’s treatment, since there is no one as interested in your welfare as you – and the Peyronie’s Disease Institute.

Peyronie’s Disease Ttreatment Philosophy – General Comments

The Peyronie’s Disease Institute treatment philosophy for dealing with Peyronie’s disease is not accepted within the medical community. You should know the opinions and philosophy of PDI are not current mainstream medical thinking, although PDI has assisted a dozen or more MDs with their Peyronies problem in the last few years.

The Peyronie’s Disease Institute philosophy for Peyronie’s treatment is different from standard medical thinking in two fundamental ways.

1. PDI recommends using mainstream Alternative Medicine therapy products (vitamin E, copper copper, DMSO, enzymes, etc.), and procedures (a special manual stretching technique we have developed, http://peyronies-disease-help.com/penis-stretching.html exercise, massage and acupuncture). These are recommended even though they have not fulfilled the testing standards usually required of medication.

2. PDI has found after seven years of review and research that taking multiple therapies, all at the same time, in sufficient quantities as described on its website that it often stimulates or supports some degree of improved ability to heal and repair the famous Peyronie’s plaque or scar. The scientific term for this phenomenon is “synergy”.

The specific therapy products used by PDI are well known and generally accepted as important, and often essential, for health and well being, such as vitamin E, MSM, acetyl-L-carnitine, etc. However, what is unique is that PDI advocates these therapy products are used in combination and in significant number for maximum potential effect and benefit. This synergistic concept of therapy used by PDI to treat PD takes advantage of the affect of synergy – a concept that is very well known in medical practice. Synergy is the ability of two or more substances to work together to produce a total effect greater than what each individual therapy could produce by itself. To learn more about synergy, go to http://peyronies-disease-help.com/penis-stretching.html

This Peyronie’s disease treatment concept is based on simple observations about this problem:

· Why do some men completely recover from Peyronie’s disease without treatment? You know, this happens in about half of the case.

· Why do some men get worse and need surgery, no matter what treatment they try?

· If the Peyronie’s plaque is similar to scars like I have on other parts of my body, why does it seem to change so much – not only the size, shape, and density of the scar, but also the location?

· If it’s actually the same problem among all the men who have it, why does Peyronies vary so much from one man to the next?

· What’s the difference between the two groups of men whose Peyronie’s disease goes away on its own, and the other in which it only gets worse no matter what they do for it?

· What is the fundamental difference between these two groups of different responses?

· How can I join the group that repairs and eliminates the Peyronie’s plaque and reverses the bent penis of PD?

Certainly , no one has complete or easy answers to this questions – yet. However, I think it makes perfect sense that the man whose Peyronie’s disease simply goes away on its own has a better healing capacity, than another man whose PD never improves. It cannot be a mater of luck; nature is just not that way. It is my opinion that you can increase your healing capacity and become healthier in some yet undetermined way so you are able to heal your Peyronie’s scar and reverse your Peyronie’s bend to the best of your ability.

The fact that some men are able to recover better than others, must mean there is variable − not static − capacity to healing and repair among men. Common sense and generally accepted knowledge about health, nutrition, and the healing process offers you and I the foundation for a treatment concept and philosophy that should improve your chances to recover from Peyronie’s disease better than if you did nothing to enhance your ability to heal. It is really as simple and direct as that.  The Peyronie’s plaque found within and on the tunica albuginea can be seen as an expression or extension of the overall health and healing potential of the body in which it occurs. Similar to an ulcer, a Peyronie’s plaque or scar can be thought of as the result of abnormal body chemistry and physiology. As such, treatment of Peyronie’s disease should attempt to improve that distressed or abnormal chemistry and physiology of the penile tissue in which the plaque is found.

All therapy products, nutrients, techniques and ideas presented by PDI are all directly or indirectly intended to improve the chemistry and physiology of the body in general and plaque elimination in the tunica specifically. The end result of this effort should be a healthier person with healthier tissue that can heal better. That is the reason all Peyronie’s therapy items are selected on the basis of their potential to improve or normalize the chemistry and physiology of the tunica of the penis and the foreign plaque material. 

This Peyronie’s treatment philosophy is not offered as those it is a Peyronie’s cure, not at all.  It is merely presented as a way to treat the man who has Peyronie’s disease, becausue  we all know this happens in 50% of the cases – so it can be done, and it is being done.  PDI is merely offering a way to increase your potential to join th ranks of the men whose Peyronie’s plaque is healed naturally.  The only difference is that you are doing specific things in a deliberate and methodical manner to heal yourself better than you did the first time around.

Peyronie’s Disease Institute adopts the judgment of Mayo Clinic concerning Peyronie’s disease when it stated. ”early stage disease [of Peyronie’s disease] is reputed to respond better than well-established plaques, an early trial of inexpensive, safe and well-tolerated oral therapy is often initially recommended. … With advances in the molecular biology of inflammation and wound healing, the management and understanding of this frustrating disease will no doubt improve.”

With this statement in mind, I strongly recommend that any man, in any stage of Peyronie’s disease – no matter how chronic or advanced – should at least investigate the use of synergy created by the combination of several simultaneous non-invasive treatment measures selected on the basis of the best understanding of your problem and the information that is available to you. Peyronie’s disease treatment is variable from one man to the next. Because the Alternative Medicine therapies used in Peyronie’s disease treatment are intended not to treat the disease but to support and strengthen the man who has the problem, so he can heal and repair it to the best of his ability.  Since we are all different, each man must approach his own search for a Peyronies cure on an individual basis.

When you look at the different therapy products on PDI website, realize that they are intended to increase your ability to heal and repair PD, just as it naturally and spontaneously happens in 50% of the men who develop this condition.   Keeping this in mind should change the way you look not only at Peyronie’s disease, but also the way that you consider your relationship to the problem and how you hope to eventually overcome it.

Peyronie’s Disease Treatment Guarantee

Proven Peyronie’s cures and other nonsense

Every month or so I receive an email from someone who wants to know if there is a guarantee for our Peyronie’s disease treatment protocol.  The email usually goes on to say that he sees “PD cures” guaranteed when he does a Goggle search.

Boy, do I love getting those questions emailed to me!

Here are a few points that every one should consider when they see an advertisement for a “proven Peyronies cure” that mentions a guarantee:

  1. Who are these people who can offer such a guarantee? I have attempted to communicate with every one of these herbal companies or penis stretching companies to ask a few questions about their guaranteed  products. It seems to me that any company that can put a real honest-to-goodness money-back guarantee on a product must either have great confidence in the ability of that product, or have no intention of returning your money because they will not actually honor their guarantee.Yet, when I try to contact these people who guarantee their Peyronie’s disease treatments, none of them has ever replied to my questions before buying their product.  Since they have proven to be unavailable before making a purchase, can you image the kind of service or chance of them honoring their guarantee after they have my money? I have found that very often these companies operate outside the U.S., making it very difficult to contact them or take action against them if it ever became necessary.  Caveat emptor, “buyer beware.”
  2. Who gives a guarantee in healthcare? No one, actually.  Even a dnetist who does a fairly simple and direct dental procedure, or someone who fits you for glasses or a hearing aid, or prescribes common aspirin, will never offer a guarantee.  Plumbers and car mechanics do not give guarantees, yet the person who has a secret herb for PD will give a guarantee.  This should make someone with Peyronie’s disease a little suspicious.
  3. What does it mean that Peyronie’s Disease Institute does not give a guarantee for its treatment procedures? Does it mean that the procedures do not work, or that it is an acknowledgement of the difficulty and complexity of the process of recovery from Peyronie’s disease?  Since of all the men who follow an Alternative Medicine treatment plan for Peyronie’s disease, no two will go about it the same way.  All men seem use a different treatment approach.  Besides different combinations of therapies, each man eventually settles on different dosages of each.  If that were not enough difference in PD treatment plans, I also know that some men are less faithful and accurate in their use of their therapy plans.  I even communicate with some men who say that after a few months of being on a large plan, they have not gotten around to using all of the 12 different therapies in their original order.  Can you imagine that?  Therapies they ordered, paid for and received, are still not being used after a few months.  They contact me for advice how to improve their treatment results. Of course, I tell them to open the box and use all of their therapies, and to use them faithfully and correctly.Also, I communicate with men who try to use their therapies, but they misunderstand the treatment concepts. The first mistake they often seem to make is to not read the detailed instructions that come with each order sent by PDI.  They might take their enzymes with their meals, instead of between meals, or they will take vitamins and minerals between meals, instead of with meals.  Sometimes they say they are too busy and cannot remember to use their therapy plan; for a few days or a week at a time, no Peyronie’s disease treatment takes place.  Then I get an email asking for advice when “the therapy plan is not working.”

For all these reasons, a guarantee of results cannot be offered since the plans differ with each man in so many ways, and I find that so many people do not do what they are supposed to do to recover from their Peyronie’s disease.

The next time you read about a company offering a Peyronie’s disease treatment guarantee, please think about these things.